Although all of the tests came back normal, Carolee Weller, owner of The Gallery Café of St. Augustine, was shocked to find out that her first grandchild had inherited a form of Down syndrome. Birth defects are common in the United States, one of the most common being down syndrome which effects one in every 800 to 1,000 births each year, but because something is common doesn’t mean it’s expected.
“She had extra folds on her eyes and webbing on her neck,” said Carolee, as well as a heart murmur that prompted doctors to run test on Kaelynn Grace Lewis. They discovered that Kaelynn had inherited a form of Down syndrome called Translocation from her mother, where her extra 21st chromosome which causes Down syndrome, attached itself to her 15th chromosome.
While the discovery may have disrupted the lives of both Lori and Mel Lewis, forcing them to quit their jobs and move to Florida from their home in Long Island, they also discovered how supportive their family’s restaurant could be.
In October of 2011, The Gallery Café of St. Augustine participated in the Buddy Walk for Downs Syndrome where they were able to raise $2,000 in donations. “Since coming here she’s been like a celebrity baby. All of our customers have taken an interest in Kaelynn and were more than happy to help,” said Carolee who also offered free homemade cookies with each donation.
In September, the small café asked locals to bring in lunch donations that would go to The Arc Jacksonville and Hope Haven, two nonprofit organizations that serves children, young adults and families with a variety of educational, developmental and mental health needs. With the help of 1240 WFOY ESPN Radio, The Gallery Café had one of its busiest days.
“Pete [radio announcer for ESPN Radio] fell in love with Kaelynn,” said Russell Kuecker, co-owner of The Gallery Cafe and husband of Carolee. “Down syndrome awareness is important to us and we wanted to get as many donations as possible. I had Pete’s card, so I gave him a call and it helped get the ball rolling.”
Still, the café doesn’t want to stop there. Carolee and Russell have been “inspired to do more good for a community we feel accepted by” and plan to host an event once a month to try to support all the local organizations that cater to special needs starting at the beginning of next year. Until then, The Gallery Café proudly sells calendars featuring their granddaughter, Kaelynn on the cover with all of the proceeds going to Hope Haven in Jacksonville.
Every year 5,000 babies are born with Down syndrome and although Carolee and Russell never expected they’d be directly affected by this common birth defect, it’s allowed them to use their dream café to do something good not only for their first grandchild but also for others in the community.